Inside HBC

I have decided to switch pediatric pulmonology specialists.

A few weeks ago I received a call from a nurse from Fairfax Pulmonology (our specialist) relaying a social services threat from Dr. Osborn.

Being threatened by Valentino’s specialist doesn’t seem like a healthy functioning patient/doctor relationship.

Because I had canceled and rescheduled two of Valentino’s visits, Dr. Osborn wanted [...]

Navigating the western medical model while also listening to my own intuition regarding Val’s health is a trying task.

I have been very hesitant to give Val the vaccinations at the pace the pediatrician and specialist would like. I have him started on vaccinations but am behind on the entire list of “required” vaccinations.

Because of my [...]

Tuesday, May 25th we had our routine pulmonologist appointment. Val is fighting a cold or flu and perhaps a lung infection? The nurse did a throat swap/throat culture and we are awaiting the results. In the meantime his new medication routine is as follows:

nasal spray (1 in each nostril daily)- to handle the constant runny [...]

Passionfruit:

The juice of passionfruit reduces cancer cell growth (research underway on this)

Contains phenolic acids and flavonoids known to be anti-microbial (key for CFers)

High in carbohydrates and simple sugars (great for weight gain for CFers)

Full of Vitamin C, A, & Potassium

Seeds of fruit are vital source of fiber

Studies have found that passion fruit extract helped provide [...]

Cystic Fibrosis is a disease that is caused by a defect in a gene that controls the amount of salt and water that line the airways of the lungs. Without sufficient lubrication, mucus builds up and blocks the airways, providing a fertile home for bacteria.

CF patients who surf, say they feel better and can breathe [...]

We are in Costa Rica and Valentino’s digestive health is exceptional. I have not had to give Valentino his Creon enzymes and Valentino has two regular bowl movements at the same time daily.

When Val was originally diagnosed with CF, he was clearly a kid that would have severe digestive issues. We’ve already had several scary [...]

When we first started nebulizer treatments 2 weeks ago, I was introduced to the new regimine by a puppy dog eyed specialist who used his quietest close talking voice to tell me he wasn’t sure how I would make it through the treatment regimine without some help. Perhaps he said that to turn me on [...]

wheezing, coughing, swollen eyes, low appetite

bright eyes, chubby cheeks, breathing clear

Many people bemoan how “time consuming” CF therapies are. It is so worth carving out the time & keeping up with therapy in exchange for free breathing. Valentino is cruising around and is full of energy now that he’s breathing clear. I’m thrilled [...]